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BETHESDA, Md. (July 16, 2025) – Today, the Cystic Fibrosis Foundation announced an additional investment of up to $24 million ...
I’ve struggled with my mental health for as long as I can remember, but being diagnosed with bipolar disorder the summer after starting Trikafta made me question how the medication may have affected ...
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In a letter to Senate leadership, the Cystic Fibrosis Foundation joined the Partnership to Protect Coverage in urging Senators to oppose the proposed Senate amendments to H.R. 1 unless changes are ...
My son was diagnosed with CF in 1965 and bravely defied the odds, living 28 cherished years. Then, decades later, I was stunned to receive a CF diagnosis of my own.
Even though Trikafta saved my life, I am still dealing with the emotional trauma of being so close to death and missing the person I was before I got so sick.
The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...
Today, Vertex released positive preliminary clinical trial results for the potential triple-combination therapy VX-445 plus tezacaftor/ivacaftor (Symdeko®).
BETHESDA, Md. — The Cystic Fibrosis Foundation recently agreed to provide up to $2 million to Nosis Bio to explore an alternative way to safely deliver gene therapies into the appropriate lung cells, ...
Pam Baker, mother of 4, has been fiercely fighting cystic fibrosis since her two oldest children were diagnosed with CF in 2002. She is a public speaker, advocate, team leader, and fundraiser with a ...
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