I have seen so much progress for our community, and when I heard about a potential solution to ongoing prophylaxis treatments ...

Amid the daily challenges of her husband's severe hemophilia B, columnist Allyx Formalejo pauses to remember the things she's ...

Waking up in pain reminds columnist G Shellye Horowitz of the importance of seeking prompt medical care for emergency needs.

Saying “I’m here if you need to talk” is a testament to my son’s strength. It sounds like a simple phrase that most would use, but it’s more than that for Caeleb. It’s evidence that he uses his life ...

Columnist Allyx Formalejo's neurodivergence and her husband's hemophilia have helped, not hurt, in finding purpose in their ...

His son being accepted for campus housing is welcome news, writes columnist Joe MacDonald, who must now focus on learning to ...

Switching to the extended half-life therapy Elocta, sold in the U.S. as Eloctate, improved control of bleeds among hemophilia ...

Since earning her ham radio license, columnist G Shellye Horowitz is grateful to have a reliable source of connection and communication.

Alhemo’s expanded approval drew on explorer8, a Phase 3 study that enrolled about 150 hemophilia A or B patients, who didn't ...

In a real-world study in South Korea, approved hemophilia A therapy Adynovate zeroed out the number of bleeding episodes for ...

The Rare Rewritten campaign hopes to change a misconception about women with X-linked disorders, columnist G Shellye Horowitz ...

This year's LadyBugs conference underscored the need for connection among women with bleeding disorders, says columnist.